Hemophila Scare

I just wanted to give an update on  Owen. It turns out he doesn't have hemophilia. Yeah! To make a long story short, (well kind of short), when he was born we tested him for the wrong type of Hemophilia. In the beginning when we found out we were having two boys and that they could possibly have hemophilia, I called my Dad and asked him what kind of Hemophilia he had, he told me Hemophilia A, so I relayed this information to my OB. At the hospital when they collected their blood, the lab was told to just test for Hemophilia A. Caleb, was also tested for Hemophilia A and his level was fine, but Owen's was low, so that is why we originally thought he had hemophilia A. However when I took him in to Primary Children's Medical Center in December to get retested for Hemophilia A, I called my dad and talked to him for a little about his Hemophilia and we figured out that he actually has Hemophilia B. He mentioned that the Hemophilia he has is called Christmas disease and he takes factor 9. (I don't know, I guess he is getting old and losing it. ha) Since it is passed on through my X chromosome, the boys should only really be able to have Hemophilia B. Anyway they retested Owen for A and B and both his levels came back within the normal range. Also, because of the new discovery with Owen, they had me take Caleb in too, to test him for "B" and his test results came back normal too. So it looks like we dodged two bullets with this one. :-) They aren't sure why Owen's levels were so low for "A" when he was first born, but for right now we aren't going to worry about it. Primary Children's said to give them a call in a year and they will retest again then, but for right now, it looks like these boys will be fine.
Both Mike and I appreciate all the questions you answered for us and the information that you sent to us. I'm so happy we were able to meet you in the hospital. It is reassuring to know we have a friend in the field, who can help answer questions and direct us in the right direction. I'll keep your information and also pass it along to my sisters in case they ever have questions or problems. Thank you again and we will keep in touch.